Choice Where Die Tender

Grant agreement ID 948609Start date 1 January 2022End date 31 December 2026Overall budget 1 874 391 ObjectiveAll humans die 60 from a chronic disease. Whenever possible this should happen where that individual feels it is the right place to be so they feel empowered and safe. We know that most would prefer dying at home but many die in hospital. To help achieve preferences we must dig deeper. Until now science has failed to capture the dynamics and diversity of preferences and places where people are cared for at the end of life. Current classifications of dying places are incomplete and inconsistent. I am driven by the vision of reforming the way dying places are classified and understood refining and shifting the focus from the end-point place of death to the pathway that precedes it.I want to develop a strong foundation for a pioneering international classification tool that maps preferred and actual places towards death grounded on what they mean for individuals beyond a purely physical or medical view. To achieve this I combine classic methods of developing health classifications with a bottom-up participatory research approach working with patient and family representatives. First I conduct a novel mixed-methods study ethnography followed by longitudinal study in 4 countries covering existing target variation to explore nuances and commonalities in the experiences of patients with life-threatening conditions and their families. Based on this I build a contemporary classification and assess its content validity in focus groups with patients carers and other stakeholders. I then test it in varied settings to examine construct validity reliability responsiveness data quality and interpretability. All data are integrated to deepen understanding of different end of life pathways in caring environments and what influences them.Prompted by my discoveries on preferences and concern with unfit classifications for a fast-growing need in a changed social world with limited care resources my research will open new directions in how to care for the dying.